Patient records
Name: Adi
Age: 28
Nationality: Indonesia
Diagnosis: End-stage renal disease (IgA nephropathy)
Treatment Hospital: Tongji Hospital Affiliated to Tongji Medical College, Huazhong University of Science and Technology (Wuhan)
Freed from the constraints of the dialysis machine, we found him a "matching" new life.
Adi, a talented young photographer from Bandung, Indonesia, 28, had captured countless moving moments with his lens. Five years ago, however, he developed gross hematuria after a cold and was diagnosed with IgA nephropathy. Despite aggressive treatment, his kidney function irreversibly failed. For the past two years, he has had to lie on a dialysis bed three times a week, watching his blood circulate in the machine for four hours. Dialysis-related complications—refractory hypertension, severe itching, and bone pain caused by renal osteodystrophy—have left him emaciated and unable to carry his beloved camera on his travels. Doctors told him that only a kidney transplant could free him from dialysis and give him a new lease on life. However, in Indonesia, the long waiting lists and the difficulty of finding a match nearly drove him to despair.
Adi's family, in desperation, found us through our community. During the initial consultation, our organ transplant coordinator, with a high degree of professionalism and empathy, meticulously collected information on his primary illness, dialysis records, HLA typing report, and overall health. We integrated this fragmented but crucial information into a clearly structured "Pre-Kidney Transplant Assessment File" that conforms to international transplant evaluation standards. This file aims to efficiently and accurately present the patient's complete clinical picture, enabling top experts to quickly grasp key information and make authoritative judgments.
We understand that time is of the essence for patients with end-stage renal disease. Therefore, we immediately initiated a targeted "Top Expert Resource Matching Program for End-Stage Renal Disease." Based on the complexity and urgency of the patient's condition as presented in the case file, we determined that the situation urgently required an assessment by the most authoritative expert team in the field of kidney transplantation in China. We recommended the Organ Transplantation Institute of Tongji Hospital, affiliated with Tongji Medical College of Huazhong University of Science and Technology. This institute is one of the largest kidney transplant centers in the Asia-Pacific region, possessing pioneering technology and extensive experience in "highly sensitive recipient kidney transplantation and ABO blood type incompatible kidney transplantation," enabling them to overcome immune barriers and find transplant opportunities for more patients.
In the initial service phase, our core services were "finding a possibility of survival" and "efficient matching." We immediately submitted Adi's "assessment file" and all matching information to the expert team at Tongji Hospital. During the subsequent remote consultation, based on the detailed file we provided, the Tongji Hospital experts gave a clear medical diagnosis: "Stage 5 chronic kidney disease (end-stage renal disease)," and confirmed that kidney transplantation was the preferred treatment option. A major challenge was Adi's high level of population reactive antibodies (PRA), meaning he had pre-existing antibodies against most people, making it extremely difficult to find a matching kidney. However, the Tongji expert team stated that they had a mature "desensitization therapy" program that could attempt to clear these antibodies, creating conditions for transplantation. Simultaneously, we processed medical visas for Adi and his mother (who volunteered as donors).
Adi and his mother flew to Wuhan. Our coordinator accompanied them throughout the process, assisting with the complex ethical review and legal procedures for living donor transplantation. Tongji Hospital developed a meticulous desensitization plan for Adi: plasma exchange combined with immunosuppressants, successfully reducing his antibody levels to a safe level. Subsequently, Professor Chen Zhishui's team successfully performed a living donor kidney transplant on Adi, using his mother's donated kidney. When the blood vessels of the transplanted kidney were connected and golden urine gushed from the ureter, everyone knew that a miracle had occurred.
The day after surgery, Adi's creatinine level dropped from over 1000 μmol/L before the operation to normal levels, and he experienced the relief of not having toxin buildup for the first time. Our medical consultant created an Indonesian version of the "New Kidney Care Manual" outlining the complex immunosuppressive regimen (tacrolimus + mycophenolate mofetil + prednisone) and infection prevention plan, and personally taught him and his mother how to monitor urine output, weight, and body temperature. After returning home, we established a "Lifelong Follow-up Record after Kidney Transplant," tracking his blood drug concentration and kidney function indicators weekly, and submitting the translated data to Tongji Hospital's experts. Using Tongji Hospital's top-notch immunomodulatory technology and our meticulous, comprehensive management, we restarted the "purifier" of life for Adi, allowing him to finally pick up his camera again and chase after the scenery he had previously missed.